Photos: Looking back on a year

The Global Partnership for Zero Leprosy officially began just before World Leprosy Day 2018. Leading up to the launch, a steering committee held several meetings to determine the priorities and structure of a global collaborative group. The founding partners included IDEA, ILEP, ILA, Novartis Foundation, Sasakawa Memorial Health Foundation, national leprosy programmes, and WHO as an observer. The secretariat team was formed at the Task Force for Global Health.

During the team’s first in-person meeting at Lepra’s headquarters in Colchester, the group finalized its charter and conducted strategic planning sessions to define the partnership’s principles, objectives, procedures and processes for new members. It was an opportunity for the group to voice diverse perspectives on issues ranging from research innovations to the impact of stigma and discrimination.

Secretariat Director Courtenay Dusenbury traveled to Bihar, India, where she met persons affected by leprosy, clinicians, community health workers, government officials and ILEP team members who had dedicated their lives to ending the disease. Working long hours in sometimes difficult conditions, these committed professionals are making headway in one of the world’s most challenging environments. The expertise of local partners will be major contributors to the Global Partnership for Zero Leprosy’s work.

Our first working group is launched in a historic meeting in Basel, Switzerland, hosted by the Novartis Foundation. Facilitators and advisors of the Research Agenda Working Group met to begin steps for developing a research agenda to achieve zero leprosy. An open call went out and the group grew to 144 members from all over the world. The research agenda aligns priorities for current and potential future innovations in diagnostics, strategies, and interventions to contribute to zero leprosy. The agenda will be available in early 2019.

Leadership team members came together for the second in-person meeting in early October, hosted by the Damien Foundation in Brussels. The team discussed the action needed to move towards zero leprosy. Many leaders and partners agreed to structure and align their organization’s work around the partnership. They also jointly agreed on an Action Framework, which describes the partnership’s goals through 2025.