TABS-Advocacy

 

The COVID-19 Crisis and Persons Affected by Leprosy Fact Sheet

Persons affected by leprosy have been especially impacted by the worst consequences of the COVID-19 pandemic. Governments, NGOs, civil society organizations, and organizations of persons affected by leprosy have enacted policies and programmes intended to support persons affected during this crisis, although there are still gaps. The Global Partnership for Zero Leprosy COVID-19 Emergency Response Working Group 2 and UN Special Rapporteur Alice Cruz, gathered data from 100+ persons affected and partners, representing 24 countries on available programmes and resources offering support to persons affected during this time. This fact sheet highlights some of the measures taken by governments and NGOs in the represented countries, and underscores the need for increased support.

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Updated: 11/06/2020
 

ILEP Technical Commission 2020 Nomination Form

The ILEP Technical Commission and the ILEP Advisory Panel, which consists of women and men affected by leprosy, both come up for re-appointment in October. The appointments will be made by the ILEP Members’ Assembly, and we are now inviting … More ILEP Technical Commission 2020 Nomination Form

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The Star January – June 2020

Read the January – June 2020  issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease, 2) Serve as an advocate for … More The Star January – June 2020

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Persons Affected by Leprosy and the COVID-19 Global Health Crisis: Working Group 2 Consultative Calls Report

Working Group 2 consulted persons affected by leprosy about pandemic challenges.

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Updated: 11/06/2020
 

Lettera aperta al Ministro degli Affari Esteri Luigi Di Maio, redatta da una rete informale e globale di persone affette dalla lebbra

Open letter to Italian Foreign Minister Luigi Di Maio, written by an informal, global network of people affected by leprosy, in response to his recent public comments. 

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Updated: 04/06/2020
 

Open letter to Italian Foreign Minister Luigi Di Maio, organized by a global network of people affected by leprosy

Open letter to Italian Foreign Minister Luigi Di Maio, written by an informal, global network of people affected by leprosy, in response to his recent public comments. 

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Updated: 04/06/2020
 

Open letter from UN Special Rapporteur on COVID-19 and leprosy

Open letter on COVID-19 and leprosy to the UN Member States from UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz. 

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Updated: 10/04/2020
 

Advice about leprosy and COVID-19

Advice about leprosy and COVID-19 from the WHO Global Leprosy Programme, ILEP, UN Special Rapporteur Alice Cruz, and GPZL. Includes guidance on diagnosis and clinical management of leprosy patients, public health aspects of leprosy in the COVID-19 pandemic, and services for persons living with disabilities and/or psychosocial consequences of leprosy.

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Updated: 10/04/2020
 

The Star Jul-Dec 2019

Read the 2019 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease. Reprinted with permission from The Star, Carville, Louisiana.

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WHO Global Leprosy Update, 2018

See the latest 2018 leprosy data and WHO’s strategies to reduce the disease burden in the Weekly Epidemiological Record, No. 35/36, Vol. 94 (30 August 2019).  

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Updated: 03/09/2019
 

The Star Jan-June 2019

Read the 2019 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease. Reprinted with permission from The Star, Carville, Louisiana.

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FactSheet: Special Rapporteur’s report to the Human Rights Council

A fact sheet about Leprosy, human rights issues associated with the disease, and the role of the the Special Rapporteur from Alice Cruz.

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Updated: 01/06/2018
 

The Star 2018

Read the 2018 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease. Reprinted with permission from The Star, Carville, Louisiana.

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WHO Global Leprosy Update, 2017

See the latest 2017 leprosy data and WHO’s strategies to reduce the disease burden in the Weekly Epidemiological Record, No. 35, Vol. 93 (31 August 2018).  

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Updated: 06/09/2018
 

WHO Guidelines for the Diagnosis, Treatment and Prevention of Leprosy

These Guidelines provide state-of-the-art knowledge and evidence on leprosy diagnosis, treatment and prevention based on a public health approach in endemic countries.

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Updated: 23/08/2018
 

Special Rapporteur First Report

First report of Ms. Alice Cruz, the UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members.   

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Updated: 19/06/2018
 

Infolep

Infolep is the one-stop source of information for leprosy and related issues, offering easy access to over 27,500 publications.

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Updated: 31/05/2018