TABS-Advocacy

 

Progress Toward Zero Leprosy

New global leprosy data shows the path to disease elimination. This resource illustrates leprosy prevalence, recent successes, current challenges, and action needed to achieve further progress toward zero leprosy.

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Factsheet: Discrimination in law against persons affected by leprosy and their family members

More than 100 laws discriminate against persons affected by leprosy worldwide. This factsheet distills the key messages from the UN Special Rapporteur Alice Cru’s report to the UN General Assembly.

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An unfinished business: discrimination in law against persons affected by leprosy and their family members

In her report to the UN General Assembly, the Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz, identifies more than 100 laws that discriminate against persons affected by leprosy worldwide. … More An unfinished business: discrimination in law against persons affected by leprosy and their family members

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Disproportionate impact of the coronavirus disease (COVID- 19) pandemic on persons affected by leprosy and their family members: root causes, consequences and the way to recovery

In this report to the 47th Session of the Human Rights Council, the Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz, addresses the disproportionate impact of the coronavirus disease (COVID-19) … More Disproportionate impact of the coronavirus disease (COVID- 19) pandemic on persons affected by leprosy and their family members: root causes, consequences and the way to recovery

ENG ESP FR
 

The Star July-December 2020

Read the July – December 2020 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those … More The Star July-December 2020

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Questionnaire from UN Special Rapporteur for the elimination of discrimination against persons affected by leprosy and their family members

The Special Rapporteur on the elimination of discrimination against persons affected by Hansen’s disease and their family members, Alice Cruz, is preparing a report due to be presented at the 47th session of the Human Rights Council in June 2021. … More Questionnaire from UN Special Rapporteur for the elimination of discrimination against persons affected by leprosy and their family members

ENG ESP FR POR
 

The COVID-19 Crisis and Persons Affected by Leprosy Fact Sheet

Persons affected by leprosy have been especially impacted by the worst consequences of the COVID-19 pandemic. Governments, NGOs, civil society organizations, and organizations of persons affected by leprosy have enacted policies and programmes intended to support persons affected during this crisis, although there are still gaps. The Global Partnership for Zero Leprosy COVID-19 Emergency Response Working Group 2 and UN Special Rapporteur Alice Cruz, gathered data from 100+ persons affected and partners, representing 24 countries on available programmes and resources offering support to persons affected during this time. This fact sheet highlights some of the measures taken by governments and NGOs in the represented countries, and underscores the need for increased support.

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Updated: 11/06/2020
 

ILEP Technical Commission 2020 Nomination Form

The ILEP Technical Commission and the ILEP Advisory Panel, which consists of women and men affected by leprosy, both come up for re-appointment in October. The appointments will be made by the ILEP Members’ Assembly, and we are now inviting … More ILEP Technical Commission 2020 Nomination Form

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The Star January – June 2020

Read the January – June 2020  issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease, 2) Serve as an advocate for … More The Star January – June 2020

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Persons Affected by Leprosy and the COVID-19 Global Health Crisis: Working Group 2 Consultative Calls Report

Working Group 2 consulted persons affected by leprosy about pandemic challenges.

ENG ESP FR POR
Updated: 11/06/2020
 

Lettera aperta al Ministro degli Affari Esteri Luigi Di Maio, redatta da una rete informale e globale di persone affette dalla lebbra

Open letter to Italian Foreign Minister Luigi Di Maio, written by an informal, global network of people affected by leprosy, in response to his recent public comments. 

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Updated: 04/06/2020
 

Open letter to Italian Foreign Minister Luigi Di Maio, organized by a global network of people affected by leprosy

Open letter to Italian Foreign Minister Luigi Di Maio, written by an informal, global network of people affected by leprosy, in response to his recent public comments. 

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Updated: 04/06/2020
 

Open letter from UN Special Rapporteur on COVID-19 and leprosy

Open letter on COVID-19 and leprosy to the UN Member States from UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz. 

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Updated: 10/04/2020
 

Advice about leprosy and COVID-19

Advice about leprosy and COVID-19 from the WHO Global Leprosy Programme, ILEP, UN Special Rapporteur Alice Cruz, and GPZL. Includes guidance on diagnosis and clinical management of leprosy patients, public health aspects of leprosy in the COVID-19 pandemic, and services for persons living with disabilities and/or psychosocial consequences of leprosy.

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Updated: 10/04/2020
 

The Star Jul-Dec 2019

Read the 2019 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease. Reprinted with permission from The Star, Carville, Louisiana.

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WHO Global Leprosy Update, 2018

See the latest 2018 leprosy data and WHO’s strategies to reduce the disease burden in the Weekly Epidemiological Record, No. 35/36, Vol. 94 (30 August 2019).  

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Updated: 03/09/2019
 

The Star Jan-June 2019

Read the 2019 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease. Reprinted with permission from The Star, Carville, Louisiana.

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FactSheet: Special Rapporteur’s report to the Human Rights Council

A fact sheet about Leprosy, human rights issues associated with the disease, and the role of the the Special Rapporteur from Alice Cruz.

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Updated: 01/06/2018