Fact sheet: COVID-19 Crisis and Persons Affected by Leprosy

Persons affected by leprosy have been especially impacted by the worst consequences of the pandemic, due to preexisting vulnerabilities and economic precarity.

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Progress Toward Zero Leprosy

New global leprosy data shows the path to disease elimination. This resource illustrates leprosy prevalence, recent successes, current challenges, and action needed to achieve further progress toward zero leprosy.

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Factsheet: Discrimination in law against persons affected by leprosy and their family members

More than 100 laws discriminate against persons affected by leprosy worldwide. This factsheet distills the key messages from the UN Special Rapporteur Alice Cru’s report to the UN General Assembly.

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An unfinished business: discrimination in law against persons affected by leprosy and their family members

In her report to the UN General Assembly, the Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz, identifies more than 100 laws that discriminate against persons affected by leprosy worldwide. She examines the roots of these laws in biomedical misconceptions about the disease and their provisions and consequences, which are reflected in the persisting dehumanization of persons affected by leprosy and their family members.

ENG ESP FR

Factsheet: Disproportionate impact of the COVID- 19 pandemic on persons affected by leprosy

In her report to the 47th Session of the Human Rights Council, the Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz, addresses the disproportionate impact of the coronavirus disease (COVID-19) pandemic on persons affected by leprosy and their family members, exploring the underlying causes and offering constructive recommendations for an inclusive recovery. This factsheet summarizes the key points from the report.

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Disproportionate impact of the coronavirus disease (COVID- 19) pandemic on persons affected by leprosy and their family members: root causes, consequences and the way to recovery

In this report to the 47th Session of the Human Rights Council, the Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz, addresses the disproportionate impact of the coronavirus disease (COVID-19) pandemic on persons affected by leprosy and their family members, exploring the underlying causes and offering constructive recommendations for an inclusive recovery.

ENG ESP FR

The Star July-December 2020

Read the July – December 2020 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease.
Reprinted with permission from The Star, Carville, Louisiana.

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The COVID-19 Crisis and Persons Affected by Leprosy Fact Sheet

Persons affected by leprosy have been especially impacted by the worst consequences of the COVID-19 pandemic. Governments, NGOs, civil society organizations, and organizations of persons affected by leprosy have enacted policies and programmes intended to support persons affected during this crisis, although there are still gaps. The Global Partnership for Zero Leprosy COVID-19 Emergency Response Working Group 2 and UN Special Rapporteur Alice Cruz, gathered data from 100+ persons affected and partners, representing 24 countries on available programmes and resources offering support to persons affected during this time. This fact sheet highlights some of the measures taken by governments and NGOs in the represented countries, and underscores the need for increased support.

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The COVID-19 Crisis and Persons Affected by Leprosy: Questionnaire Results

The economic, social, and health impacts of the COVID-19 pandemic have led to a significant increase in the need for humanitarian aid and social protection measures. Persons affected by leprosy have been especially impacted by the worst consequences of the pandemic, due to preexisting vulnerabilities and economic precarity.
Governments, NGOs, civil society organizations, and organizations of persons affected by leprosy have enacted policies and programmes intended to support persons affected during this crisis, although there are still gaps. To support the effectiveness of these interventions, and to help raise awareness of resources available to persons affected, the Global Partnership for Zero Leprosy’s COVID-19 Emergency Advocacy Working Group and UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members Alice Cruz, gathered data on available programmes and resources. The following information was gathered through an online questionnaire from 100+ persons affected and partners, representing 24 countries.

The situation in countries regarding COVID-19 is constantly changing. This page will be regularly updated. If you have an update or correction to this information, please contact us.

 

Interested in further information about COVID-19 response in these and other countries?

View these articles from our partners and other organizations:

“Caring Through the Coronavirus Crisis” from The Leprosy Mission Scotland

“Coronavirus Response” from American Leprosy Missions

“COVID-19 Emergency Appeal Update” from Lepra

“COVID-19: Leprosy or tuberculosis patients at risk” from Action Damien

“Liberia: How Ebola prepared us for COVID-19” from effect:hope

“Our response to COVID-19” from the Leprosy Mission International 

Social Protection Responses to COVID-19 Crisis around the World data dashboard from the International Labour Organization

“Supporting Persons Affected by Hansen’s Disease during the Coronavirus Pandemic” from the Sasakawa Health Foundation

The Star January – June 2020

Read the January – June 2020  issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease, 2) Serve as an advocate for those who have experienced or been impacted by Hansen’s disease, and 3) Foster self-empowerment of those who have experienced Hansen’s disease.
Reprinted with permission from The Star, Carville, Louisiana.

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Persons Affected by Leprosy and the COVID-19 Global Health Crisis: Working Group 2 Consultative Calls Report

Emergency Response Working Group 2: Emergency Advocacy for Persons Affected, has conducted consultative calls with individual persons affected and persons affected organizations to gather information about the challenges persons affected are facing during the COVID-19 pandemic. This report details these challenges and concerns, covering access to health care, access to fundamental goods, access to government support, access to stable livelihoods, access to information about COVID-19, and the impact of intersecting vulnerabilities on the resiliency of persons affected.

In addition to the report, this document includes recommendations of specific actions NGO and government leaders can take to address the needs and challenges of persons affected during the COVID-19 pandemic. The final section of the report is an open letter on COVID-19 and leprosy addressed to UN Member States from UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz.

ENG ESP FR POR

Lettera aperta al Ministro degli Affari Esteri Luigi Di Maio, redatta da una rete informale e globale di persone affette dalla lebbra

Lettera aperta al Ministro degli Affari Esteri Luigi Di Maio, redatta da una rete informale e globale di persone affette dalla lebbra.

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Open letter to Italian Foreign Minister Luigi Di Maio, organized by a global network of people affected by leprosy

Open letter to Italian Foreign Minister Luigi Di Maio, written by an informal, global network of people affected by leprosy, in response to his recent public comments.

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2 June 2020 ·

Open letter from UN Special Rapporteur on COVID-19 and leprosy

This letter details the impact of the COVID-19 pandemic on persons affected by Hansen’s disease and their family members and provides governments with recommendations.

Open letter from UN Special Rapporteur on COVID-19 and leprosy

Please find below an open letter on COVID-19 and leprosy to the UN Member States from UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, Alice Cruz. This letter details the impact of the COVID-19 pandemic on persons affected by Hansen’s disease and their family members and provides governments with recommendations to mitigate its impact in the medium and long term.

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Advice about leprosy and COVID-19

Advice about leprosy and COVID-19 from the WHO Global Leprosy Programme, ILEP, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members Alice Cruz, and GPZL.

ENG FR

The Star Jul-Dec 2019

Read the July-December 2019  issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease.
Reprinted with permission from The Star, Carville, Louisiana.

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WHO Global Leprosy Update, 2018

See the latest 2018 leprosy data and WHO’s strategies to reduce the disease burden in the Weekly Epidemiological Record, No. 35/36, Vol. 94 (30 August 2019).

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The Star Jan-June 2019

Read the January-June 2019 issue of The Star, radiating the light of truth on Hansen’s disease. The purpose of The Star is to: 1) Promote an educated public opinion of Hansen’s disease. 2.) Serve as advocate for those who have experienced or been impacted by Hansen’s disease. 3) Foster self-empowerment of those who have experienced Hansen’s disease.
Reprinted with permission from The Star, Carville, Louisiana.

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6 May 2019 · Global Partnership for Zero Leprosy

Meet Dr. Ibtissam Khoudri from Morocco’s Ministry of Health

Dr. Ibtissam Khoudri leads the leprosy program in Morocco’s Ministry of Health and is a chairperson for the Operational Excellence working sub-group 5. We spoke to her about Morocco’s success in reducing leprosy, the critical issues countries face in trying to get to zero leprosy, and how the partnership’s work can help.

FactSheet: Special Rapporteur’s report to the Human Rights Council

A fact sheet about Leprosy, human rights issues associated with the disease, and the role of the the Special Rapporteur from Alice Cruz.

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